The last few years my health started to gone down. About a year ago my phone was stolen and I injured my back during the craziness. I saw my doctor. I had a bulging disc. She also suggested that I apply for disability because she has seen how much my health has disintegrated. I currently use a cane when I am out and about. Eileen is my outdoor cane. Micheal Cane is my indoor cane (when needed).

About a year ago, I started the journey with applying for disability. Also, I knew something else was going on. I saw my family doctor. Then journey to figure out what is going on. Long story short. Blood work done. MRI. Lots of tests of muscle strength. Flexibility. Also, checked if I still have Fibromyalgia. That was extremely painful and sent me a flare up. I have seen two specialist and waiting to see another. The thought was that I have MS, but I am clear for that. They are thinking that I a Functional Neurological Disorder.

It is an emotional roller coaster. So thankful for true friends and family who listen and encourage me. Watching videos as I am on this journey of trying to figure out what is going on. During all this my disability application was denied. I asked for a review that was that was also denied. I have tribunal date coming up against disability decision in July. Truly thankful for the people who have been through the disability process because I learned that this is normal, unfortunately.

This year, I have been trying to stay afloat. I am learning that I have a lower spoon count. One of my proprieties is working on de-cluttering and giving my home proper clean. I learning to give myself grace. I am not the same person health wise that I was 5 or even 1 year ago. Learning to adapt to changing health issues. Still on the journey to figure what is going on. I am waiting to see another specialist and on a wait-list for a pain management clinic.

I am back into reading again. Discovering new TV shows and anime. I enjoy doing diamond art painting. I am on a waiting list for a waiting list for free physical therapy. The diamond art is helping dexterity and range of moment. Finding joy in life during uncertainty. I enjoying writing again. πŸ™‚

(in a bit of a higher pain level, writing for a distraction. spelling and grammar will be corrected later).

Hannah M Avatar

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2 responses to “Life Changes with Disability”

  1. The Mindful Migraine Blog Avatar

    πŸ˜”πŸ’œsorry things are so rough. Managing your spoons sounds like an important step forward. Sending love and support, (chronic pain person) Linda xx

    Liked by 1 person

  2. The Mindful Migraine Blog Avatar

    Ps – I love the names you have christened your walking canes – keeping your sense of humour helps so much, 🀩

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